As of 08 February 2018, I am out of the wheelchair. My recovery from surgery has been going amazing and I prayed about it. An honestly, I felt as if I was ready to start walking outside of the house. February 8th, was my first day walking inside of the school for the whole day. To me its a huge accomplishment considering how big my high school is. I honestly felt like the wheelchair was enabling me too much because I would wake up and be straight in it for a entire school day and then come home and sit down and do homework and then go to bed. My day had very little movement of my legs in it. I felt like it was making me lazy as if I could sit back and relax because I was in the chair an just had surgery. That was honestly the mindset I was falling into, unintentionally.
It has now been almost a week and a half of me walking in school. An it is going great! I am feeling wonderful and my legs are getting good exercise. I still use the elevator at school because I don’t want to push it but it is amazing!
Today is my 5 year anniversary for the day I was diagnosed! It is so crazy to me to look back and see how far I’ve come. I remember the days where I used to think I wouldn’t make it or couldn’t do it anymore. Thanks to God and my amazing support system I am here today. I carry the scars of what I went through and I am proud. Proud to tell my story and proud to be able to shine a light on Childhood Cancer.
Sorry I have been absent for a couple days, I have been recovering from surgery. By the way, everything went amazing! For those who don’t know why I had surgery, I will explain..
Because of the cancer treatments and steroids they gave me, I got something called a vascular necrosis. Which essentially means my bones are dying. I have it in both my knees and my shoulder. In 2015, we had a bone graph done on my right knee. This winter, they did the exact same thing on my left knee. And then, my shoulder ended up collapsing so we had to replace it in 2016.
Back to the surgery update.. I have been doing well since surgery. I am on a pain plan to help combat surgery pain as well as my regular pain. Although, my foot and my ankle are pretty swollen. We talked to the doctor and we are elevating it in a different way now that should help as well as icing. If it gets worse though, we will go to the ER straight away. But as of right now, we are working with our first plan.
Another thing I wanted to say was thank you for all your guys constant prayers and support. I feel as your guys love! Thank you so so so much! PLEASE continue to pray for a speedy recovery and healing.
On June 24,
I went to the DMV to take my permit test. I have taken before and failed by just a little bit, so I was so nervous and anxious. BUT GUESS WHAT!! I passed, I am so proud of myself. I really owe thanks to my family for believing in me, because I really wasn’t sure if I could do this..
Also, June 24th marked my one year after my shoulder replacement surgery. I am so thankful to Dr. Kam for all he has done for me. He is an amazing doctor. An I am so thankful to have had him as my doctor.
Lately, my shoulder has been hurting because I pushed it too far. I think I was rushing things and taking my time to properly stretch it out. It doesn’t help that I don’t go to PT because of some issues. I am left on my own to work it out and have been pushing it too far. I just need to slow down and take it one day at a time. I was so worried that I messed something in my shoulder up, but I grabbed a verse (from my scripture jar a friend made me) that reminded of something. It reads, “The LORD, your God will be with you always. Joshua 1:9” I know God will take care of me. He will never leave me. He knows my pain and he gives me the strength to get through it. HE isn’t only the God of my triumphs, but the God of my struggles as well.
As of February 20th, it has been 4 years since my diagnosis of Pre-B cell ALL Leukemia.
I would like to thank my family for always being by my side fighting this battle with me. This diagnosis didnt onmy affect me, but the closest people around me as well.
I also want to thank God for guiding ne and giving me the strength to fight the battle.
Without God and my family by my side, I dont know how I would be able to handle this.
Yesterday, I came home from school and my mom said she had something for me. She pointed to T.V. stand where there was a clear bag. I was confused about what it was until, I realized that it was……MY PORT! I was so excited! It is a memory I get to keep. It symbolizes all I have went through and the end of a part of my journey. IT IS SO AMAZING! God is good, and I am so thankful that he has been by my side. As well as giving me my family to walk this journey with me.
Yay! My port is out! I went in yesterday afternoon for the surgery. I was a bit nervous, but the excitement took over. This is a huge step in my journey! It to me, signifies the end, like the real end. I am so happy and thankful to all the people who have walked this journey with me. An the people who have encouraged me and lifted me up. Everyone who has fought right along side me, especially my family who has never left me! All the glory goes to God! In him anything is possible, you just need to believe and put your faith in him! “I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME.” Philippians 4:13
Pictures – (top: after surgery; bottom: before surgery with a stuffed animal the lady who got me settled gave me)
Pictures – (My family and I waiting in the waiting room to be called back; top: me, mom, & sister; bottom: dad and brother)
In Photography Class, these past 2 weeks we have been working on soming she called “The Theory of Life”. Basically, we had to create a 3 by 4 collage of pictures that expressed the words below it. After you put it all together, it would be a story. You could write about anything, but I chose to write a short story about my journey. Here is a picture of the final product…….
I am so proud of it and everyone likes it. I love the facial expressions and the story. I am so proud of myself, I worked hard on it, it was more complicated than you think.
Friday I had a cancer doctor appointment. Everything looked great, but I got so excited when…… Arlene, my mom, and I talked about getting my Port out!!!!! Talk about EXCITING!!!!