I Am Finally Walking

As of 08 February 2018, I am out of the wheelchair. My recovery from surgery has been going amazing and I prayed about it. An honestly, I felt as if I was ready to start walking outside of the house. February 8th, was my first day walking inside of the school for the whole day. To me its a huge accomplishment considering how big my high school is. I honestly felt like the wheelchair was enabling me too much because I would wake up and be straight in it for a entire school day and then come home and sit down and do homework and then go to bed. My day had very little movement of my legs in it. I felt like it was making me lazy as if I could sit back and relax because I was in the chair an just had surgery. That was honestly the mindset I was falling into, unintentionally.

It has now been almost a week and a half of me walking in school. An it is going great! I am feeling wonderful and my legs are getting good exercise. I still use the elevator at school because I don’t want to push it but it is amazing!

*Surgery Update*

So like I have said before, my surgery went well, but afterwards, I ended up with an abscess. Which than caused my whole incision to open up. I was put on antibiotics to clear that up which it did, thank God. After that whole thing happened, my incision had trouble healing back up. So we were on watch for that and were going to the doctor every 1-2 weeks. Well now, my incision is looking good and the bone graft that they did is settling in well.

It is always nerve wracking and scary when you go in for surgery because there can always be complications. I thank God for keeping his arms around all the doctors, nurses, and anyone who came in contact with me. He knew what he was doing when he had all those doctors and nurses lined up to work on.

I have been doing weight bearing and walking around quite a bit, no more walker/crutches or full leg brace. Although, I am still in a wheelchair during school because my mom doesn’t want me doing a full day of walking yet. Maybe in another month or so I can start trying to do a full day of walking since I can walk around in the grocery store now. Its all about timing. I give it up to God and when he thinks I am ready he will let us know.

I Passed!!!!/My One Year

On June 24,

I went to the DMV to take my permit test. I have taken before and failed by just a little bit, so I was so nervous and anxious. BUT GUESS WHAT!! I passed, I am so proud of myself. I really owe thanks to my family for believing in me, because I really wasn’t sure if I could do this..

Also, June 24th marked my one year after my shoulder replacement surgery. I am so thankful to Dr. Kam for all he has done for me. He is an amazing doctor. An I am so thankful to have had him as my doctor.

 

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I Got My Port?

Yesterday, I came home from school and my mom said she had something for me. She pointed to  T.V. stand where there was a clear bag. I was confused about what it was until, I realized that it was……MY PORT! I was so excited! It is a memory I get to keep. It symbolizes all I have went through and the end of a part of my journey. IT IS SO AMAZING! God is good, and I am so thankful that he has been by my side. As well as giving me my family to walk this journey with me.

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Port Removal Surgery

01/06/17

Yay! My port is out! I went in yesterday afternoon for the surgery. I was a bit nervous, but the excitement took over. This is a huge step in my journey! It to me, signifies the end, like the real end. I am so happy and thankful to all the people who have walked this journey with me. An the people who have encouraged me and lifted me up. Everyone who has fought right along side me, especially my family who has never left me! All the glory goes to God! In him anything is possible, you just need to believe and put your faith in him! “I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME.” Philippians 4:13

Pictures – (top: after surgery; bottom: before surgery with a stuffed animal the lady who got me settled gave me)

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FB_IMG_1485237799341Pictures – (My family and I waiting in the waiting room to be called back; top: me, mom, & sister; bottom: dad and brother)

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Physical Therapy Update

This last Friday at physical therapy was and reevaluation day. I am so excited to tell you guys what happened.

So Friday at physical we had to do a rereevaluation. My therapist Natalie tested my active and active/passive range of motion. I am so excited with how far I have come after my half shoulder replacement surgery.

We started with my normal routine and then started with the evaluation. We tested my active range of motion, which is me moving/lifting my arm by myself. Going straight out front I got to 90°, to the side I got to 78°, and with my arm my side bent at at the elbow I got 0° (and we’re only aloud to go to 30°). We then did some active/passive table stretching. Going straight out to the front she stretched me out to 122°, going out to the side she got me to 120°, and with my arm by my side with my arm bent pushing it outward she got me to 16° (and we’re only aloud to go to 30°).

I am beyond proud of myself! I am can’t believe how far I have come! I am so thankful to all the people who pushed me, helped me, and believed in me. I have worked so hard to get where I am today. I thank God for never leaving me and standing by me throughout everything.

 

 

 

 

Shoulder Replacement Update

Yesterday, I have had my 6 week after surgery appointment with Dr. Kam. He previously told us after 6 weeks out from my replacement I wouldn’t have to wear the brace anymore and we would get new orders for physical therapy.

When we went to my appointment yesterday he said that I don’t need the brace anymore, except for when school starts to make people more aware. He also said I can start to move it just no pushing, pulling, lifting, or putting it behind my back. He gave us some new protocol to follow for physical therapy. He helped me active assistively move my arm. At the end of the visit, we looked at the x-rays he had taken when we got there. My shoulder replacement looks amazing, everything is lining up properly and nothing is hurt or damaged. It looks really nice and clean. 

I am so thankful for all the people who have supported me and helped me get through this. Especially, with all I have been dealing with lately. I am so happy with all my progress I have made. I have been working hard and trying to not push myself but not slack off at the same time. I thank God for supporting and being by my side and letting me never lose faith.

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Surgery Update

July 9,

Hey guys! I am so sorry I am updating so late. It has been crazy since I got out of the hospital. I have been on heavy medicine, which causes me to sleep a lot.

I have been doing well though. The surgery was a success and everything went well. Thanks to Dr. Kam, my amazing doctor and surgeon. I am now two weeks out from surgery. I started physical therapy right away, only doing passive movements. Which means I can’t move my arm by myself.

For a little back story; due to the AVN the steroids and cancer treatments caused, I had to under go surgery. From the AVN, my shoulder began to collapse. It had went so far that my last two options were having a half shoulder replacement or using a cadaver. So, knowing this I prayed about it. After praying for a week or so, I felt like God was telling me to continue with the shoulder replacement.

Through this process, I thank God for helping me through this journey so far and being by my side! He gives me the strength to get through everything I have gone through. Just like my bible verse that helped me through my cancer, “I can do all things through Christ who strengthens me.” With God by my side I can do or go through anything!                                                                                                                    I would also like to thank everyone who has stood by my side and supported me! Especially my family, they have always been right by my side cheering me on. I am so thankful for that! They love me to death and I love them too! They do anything to cheer me up and put a smile on my face!                                                                                       Another person whose support I am thankful for is my best friend Natalie. Even though she lives many miles away in California, she supports me lots. Our talks help calm me down and know that I can get through this. I love her lots and am thankful for a bestie like her!

Pre-Surgery Jitters

Hey guys! I need some prayers for my nerves. Even though my shoulder replacement surgery is in late June, I am getting nervous. I believe it’s the devil trying to get me to back down. I have prayed about this surgery for so long and I know that God wants me to do this. These nerves are not enough to get me to back out. I am just nervous about all the cons and I am so young, almost sixteen. I know God has a plan for my life and this surgery. I will continue to lean on him. I just need some prayers for my nerves and that God will take over my nerves, he has already has my life. I thank God for always being by my side and always comforting me. I know my doctor wouldn’t do anything on me he wouldn’t do on himself.  I am going to pray to God about my nerves. I ask that you guys pray for me as well! Love you guys lots, talk to you soon!

“I can do all things through Christ who strengthens me” Philippians 4:13 ??

Shoulder Replacement Update

This week, Tuesday the 29th we went to see my shoulder doctor, Dr. Kam. From my bone doctor, we were told my shoulder is closed. So we went and seen Dr. Kam to let him know and see where we are going from here (surgery?).

If you guys haven’t read my post before about my shoulder I ‘ll give you a little background. I went through 2 1/2 years of cancer treatment for Pre-B Cell High Risk Acute Lymphoblastic Leukemia. The steroids and medicine have caused me AVN of both knees and my left shoulder. Due to the a vascular necrosis, my shoulder is pretty much destroyed. I now need a shoulder replacement.

I have been waiting for my growth plate to close so that I am at skeletal maturity and can go ahead with surgery. Well, now I am closed and ready for surgery. We talked about all the complications, what this journey will consist of, and what happens once I go down this road. It is a huge decision deciding to have a shoulder replacement, especially at my age. My huge deciding factor was pain relief.

I thank God over all for being with me through this journey and never leaving my side. I have prayed countless days and nights over what I should do and what is the best decision. I thank him for putting the right people and doctor in my life to take care of me. I am so thankful for my family for being by my side, always taking care of me, and loving me.