This week, Tuesday the 29th we went to see my shoulder doctor, Dr. Kam. From my bone doctor, we were told my shoulder is closed. So we went and seen Dr. Kam to let him know and see where we are going from here (surgery?).
If you guys haven’t read my post before about my shoulder I ‘ll give you a little background. I went through 2 1/2 years of cancer treatment for Pre-B Cell High Risk Acute Lymphoblastic Leukemia. The steroids and medicine have caused me AVN of both knees and my left shoulder. Due to the a vascular necrosis, my shoulder is pretty much destroyed. I now need a shoulder replacement.
I have been waiting for my growth plate to close so that I am at skeletal maturity and can go ahead with surgery. Well, now I am closed and ready for surgery. We talked about all the complications, what this journey will consist of, and what happens once I go down this road. It is a huge decision deciding to have a shoulder replacement, especially at my age. My huge deciding factor was pain relief.
I thank God over all for being with me through this journey and never leaving my side. I have prayed countless days and nights over what I should do and what is the best decision. I thank him for putting the right people and doctor in my life to take care of me. I am so thankful for my family for being by my side, always taking care of me, and loving me.
So, this week has been rough. Monday would have been my uncles 30th birthday, but he is no longer here with us. Along with that, a sweet cancer fighter lost her battle. Then, after that I got more terrible news my friend who also is Battling Cancer isn’t doing to well, his name is Cooper. Please pray for him and all the other children in the world who are fighting this horrible disease called CANCER! I’m asking everyone will you please help my friend Cooper & his family. They have been in the Hospital for over 100 days, If you can donate at least $1, Cooper’s family and I would appreciate it just click on the link: https://www.gofundme.com/teamcoop
I have been hurting a lot this week. Although, I have been hurting God has been by my families side and all the other families side as well. He is helping us through these heart breaking days. God had a special plan for these wonderful peoples lives and now he doesn’t want them to suffer any more. I trust in God’s plan, but sometimes you can’t help but wonder why…. God’s plan and mission is always bigger than ours and only he knows what it en-tells. I thank God for these lovely people in our lives and the lives they have touched.
Lord, I pray for all the families that are grieving at this time lord. Comfort them and blanket them in peace and your love. Lay your hand on their heart and help them get through this. Help them understand that they won’t be suffering anymore. Let your light shine in their lives. All things happen for a reason, let this reason be known to the families. Let the families know their angels are watching them, are proud of them and love them so very much. I pray this in your name, AMEN!!!
Hey guys! I’m back!
I just wanted to update you guys on my week. I haven’t had the best week. Although, God got me through! I went to school Monday, but on Tuesday morning I was getting ready for school & I started to feel sick like I was going to throw up. My mom said I need to figure out what I want to do, go to school or stay home. I didn’t want to miss school but I couldn’t make it. I chose to stay home and texted my bus driver. I went to bed and went back to sleep. After, I woke up I still was feeling sick some decided on staying home the rest of the week. On Thursday, I had a IVIG, because my immune system was low. Which really wore me out. Friday, I went to my bone doctor and he took x-rays to see how I am healing. Which is well!! We also talked about which surgery we want to do next. An here we are today, Saturday. I am worn out from the week, but I am thanking God for getting me through the week. All the praise to God! My teacher came over to help get me caught up on school work, which I really appreciated. I am almost all caught up, so that’s good! Now I am writing to you all. I hope your guys week was amazing! If not, I pray that next week it will be better. Whatever you are struggling with, may God help you through it. I love you all! I hope you enjoy your night! Hold you family tight! An thank God for all he has given to you! Goodnight!
I am so thankful to God for waking me up today! I have been battling my sinus’ and because of them I haven’t been feeling well. It gives me really bad headaches from the presser on my forehead and stuffy nose/runny nose. In general, when I’ve woken up these past weeks I have not been feeling well. I thank God though, for giving me the strength to get through today. He is ultimately my strength, and I lean on him when I feel weak. Remember, God will always be there when you need him. He is with through each step of each day.
Today was a wonderful day, I enjoyed school! I am thankful that He gives me the strength to persevere through each and every day! May God be with you each and every day! May you have the strength to call on Him when you need Him. Thank Him for all He does! Have faith that He will carry you through!
In January, I went for my first check up since my knee surgery.
For all who don’t know, because of the chemo and steroids I ended up with necrosis of my bones. My bones have started to die in both of my legs and my left shoulder is no longer there. Due to all the damage, I now need surgeries to remove the dead bone in my knees and a shoulder replacement. On December 21, 2015, I had my first surgery to correct this. We started with my right leg, because it was hurting me the most out of both of my knees.
We found out that I would be seeing another doctor at my check up because my doctor was on indefinite leave. Mr. Stewart was very nice! He checked my leg and took the dressing off. He said my incision is healing very nicely and is almost closed completely! Oh, guess what!!!!….. He also said that I could start putting a little more weight on my leg!! I was so excited to hear that all is healing well!
Without God and my amazing family, I could have never made it through all I have been through! I am so thankful and grateful! God is my strength, when I am weak and weary he carries me through. He stands by my side and is with me every step of the way! “I can do all things through Christ who strengthens me.” Philippians 4:13
Lastly, I have a prayer request. I mentioned my doctor was on indefinite leave. Well, a health issue has come up and she has to take care of herself. Please, pray for her and her health! May God be by her side and watching over her as she deals with. Comfort her and her family as they walk this journey. Give all people who come in contact to help her the knowledge. In Jesus’ Mighty Name, AMEN!! I love you Dr. DeRoode!!
Yesterday, I had a great day! Although, I didn’t feel well. I thank God for getting me through yesterday and everyday!
As I am on the bus this afternoon, I thinking about how blessed I am! An what an amazing God I have!
This morning I wasn’t feeling well, but I knew I could push through today. I asked my parents and sister to pray for me and they did. I MADE IT THROUGH TODAY! I beyond proud of myself! I give God all the glory! When I am weak and weary he carries me and he definitely did today! With all I have going on, I continue to persevere through it all! I have so much support from my loving family and friends! I thank God for you all! I thank God for being by my side every step of each and every day!
I battled cancer, ALL Leukemia, for two and a half years. It was the hardest thing I have ever been through!
The chemo and steroids did have minor side effects. For example, mouth sores, mood swings and being nauseous, etc. But, there are long term side effects that I have even after I finished chemo. From the steroids I now have a vascular necrosis in both knees and my left shoulder. My shoulder is collapsed. My only options are leave the shoulder as is or do the shoulder replacement and use the smallest one possible.
Lately, I have been in constant unbearable pain and nothing helps. I am on heaving medication and that isn’t helping. I can’t sleep and my pain is 10/10 all of the time.
A couple weeks ago I went to my clinic, Children’s Specialty Center (CSC), for an infusion. The infusion is to stop any further deterioration of my bones. It was a three day infusion over four hours. I am praying it works. If it does I will get it every four months.
I know God has plans for me and I will keep standing in my faith, trusting in his plan. God is my healer and I will cry out to him in my pain because I know he will heal me. Please pray for me. There is power in prayer.