Sorry I have been absent for a couple days, I have been recovering from surgery. By the way, everything went amazing! For those who don’t know why I had surgery, I will explain..
Because of the cancer treatments and steroids they gave me, I got something called a vascular necrosis. Which essentially means my bones are dying. I have it in both my knees and my shoulder. In 2015, we had a bone graph done on my right knee. This winter, they did the exact same thing on my left knee. And then, my shoulder ended up collapsing so we had to replace it in 2016.
Back to the surgery update.. I have been doing well since surgery. I am on a pain plan to help combat surgery pain as well as my regular pain. Although, my foot and my ankle are pretty swollen. We talked to the doctor and we are elevating it in a different way now that should help as well as icing. If it gets worse though, we will go to the ER straight away. But as of right now, we are working with our first plan.
Another thing I wanted to say was thank you for all your guys constant prayers and support. I feel as your guys love! Thank you so so so much! PLEASE continue to pray for a speedy recovery and healing.
So I know you guys probably read my Wheelchair Raint a little while back, I have an update on that.
For the past 3 weeks I have been walking in school and not using the wheelchair. My wheelchair went out the Sunday before the day I was supposed to go to school. It just gave out. I decided that I would just walk around the school but use the elevator. I wasn’t going to push myself, but I knew I could do it. After the frst day,I felt great. My parents found someone that xould fix the chair but I wanted to walk. I told them I’d pray over it and see what I wanted to do. I felt God telling me to do it amd not to limit myself. That I needed to trust in him and myself, not to doubt him or let anyone doubt me. Ever since then, I have been walking in school. A HUGE ACCOMPLISHMENT FOR ME!!
So I’m just going to be real, everything isn’t all sunshine and rainbows as it may seem. I am may seem so brave and strong, but truth be told I’m not always that strong girl. Honestly, I am tired and frustrated right now. I am sick and tired of cancer! I may be done with treatment, but now I will have long term side effects for the rest of my life. Chemotherapy killed the cancer, but now I am stuck with fixing everything it messed up. I am frustrated with everything I have to endure and go through. I am tired of being in pain and taking pain medication. It wears down my body. I have been through so much and don’t want to go through anything else. I feel like no one understands, my family gets it but at the same time doesn’t get it. Even though they don’t always get it, I thank them for their support. Whenever there is a teen scene with Candlelighters, I am not feeling well or worn out. I really need to talk to other teens that have been through what I have been through.
Right now, I really need prayer! I don’t want to go into a deep depression over this. I just really need you guys to pray for me right now. I am just going through some things. Your prayers are so greatly appreciated! I know God will help me through this, I just need to have faith in him.
The three day infusions I have for my bones really drains me. Although, they have made it a 2 hour infusion, instead of 4. It is still very hard on my body. It wears me out and my body out. I get so tired and drained. So, this weekend I am just resting. Can I get some prayers guys. This is so draining and with the motion sickness/not feeling well I have going on, it’s so hard. I just ask that you guys pray for my strength and energy this upcoming school week. God has always helped me and he will get me through this week.
“I can do all things though Christ who strengthens me.” Philippians 4:13
So, this week has been rough. Monday would have been my uncles 30th birthday, but he is no longer here with us. Along with that, a sweet cancer fighter lost her battle. Then, after that I got more terrible news my friend who also is Battling Cancer isn’t doing to well, his name is Cooper. Please pray for him and all the other children in the world who are fighting this horrible disease called CANCER! I’m asking everyone will you please help my friend Cooper & his family. They have been in the Hospital for over 100 days, If you can donate at least $1, Cooper’s family and I would appreciate it just click on the link: https://www.gofundme.com/teamcoop
I have been hurting a lot this week. Although, I have been hurting God has been by my families side and all the other families side as well. He is helping us through these heart breaking days. God had a special plan for these wonderful peoples lives and now he doesn’t want them to suffer any more. I trust in God’s plan, but sometimes you can’t help but wonder why…. God’s plan and mission is always bigger than ours and only he knows what it en-tells. I thank God for these lovely people in our lives and the lives they have touched.
Lord, I pray for all the families that are grieving at this time lord. Comfort them and blanket them in peace and your love. Lay your hand on their heart and help them get through this. Help them understand that they won’t be suffering anymore. Let your light shine in their lives. All things happen for a reason, let this reason be known to the families. Let the families know their angels are watching them, are proud of them and love them so very much. I pray this in your name, AMEN!!!
Yesterday, I had a great day! Although, I didn’t feel well. I thank God for getting me through yesterday and everyday!
As I am on the bus this afternoon, I thinking about how blessed I am! An what an amazing God I have!
This morning I wasn’t feeling well, but I knew I could push through today. I asked my parents and sister to pray for me and they did. I MADE IT THROUGH TODAY! I beyond proud of myself! I give God all the glory! When I am weak and weary he carries me and he definitely did today! With all I have going on, I continue to persevere through it all! I have so much support from my loving family and friends! I thank God for you all! I thank God for being by my side every step of each and every day!
The 21st, Monday morning I posted this on Facebook, in the morning before I left the house for surgery: “Hey guys! Can you guys send lots of prayers up for me early this morning and all day long. I have surgery in a couple hours. I know God has this! The enemy is making me have a worried spirit but, I know God ultimately is my healer and father. He knows the plans he has for me! I put all my trust and faith in him! Jesus I call on you! Be by my side as I go through surgery today. Comfort my worried heart. I know you will take care of me and have great plans for me! Blanket my family in comfort as they have to watch patiently for me to have surgery and be released from surgery. Let us all come together to support each other in the scary time. In Your Mighty Name, AMEN!!!”
Wednesday the 23rd, I was discharged from the hospital. I posted this on Facebook: “Hey Inspiration Warriors! It is Alyssa here. I wanted to let you guys know that I was discharged and got home a couple hours ago. I have been getting situated in the house and getting comfortable. Took my medication. I got a sharp pain but caught it before it got really bad. Now I am just soar from surgery. I am also sleepy but, glad to be home! I praise God for letting me be able to be home with my wonderful family and having great doctor and nurses! Have a great night! Get some rest, I will be getting some much needed rest.”
Surgery went very well. While in the hospital they had a Physical Therapist came in and helpd me walk with a walker. I don’t have any strength in my left arm and my leg needs the same surgery the right got. So I really didn’t have much to work with. My right arm has lots of strength so they got me a right handed walker. I can put very little weight on my right leg (the one that had surgery). I walk with the left foot first, then push off lightly with the right and hold on to the walker. It felt good to be up and walking but my leg was super sore. I did get the hang of it though. I have to make sure I keep the strength in my legs.
As of now I am still very sore. I am home with my family and that is all that matters! I was able to be home for Christmas Eve and Christmas Day. I was really worried that I wouldn’t be. I thank God that everything went well. God is so good!
I thank you all who prayed and are still praying for me. I still have six months of healing. I also have more surgeries to go to fix what the chemotherapy and steroids caused. There is power in prayer! God has taken care of me and always will. I am thankful to my family for helping me through this and being by my side. Please continue to pray for me! All prayers are welcome.
I battled cancer, ALL Leukemia, for two and a half years. It was the hardest thing I have ever been through!
The chemo and steroids did have minor side effects. For example, mouth sores, mood swings and being nauseous, etc. But, there are long term side effects that I have even after I finished chemo. From the steroids I now have a vascular necrosis in both knees and my left shoulder. My shoulder is collapsed. My only options are leave the shoulder as is or do the shoulder replacement and use the smallest one possible.
Lately, I have been in constant unbearable pain and nothing helps. I am on heaving medication and that isn’t helping. I can’t sleep and my pain is 10/10 all of the time.
A couple weeks ago I went to my clinic, Children’s Specialty Center (CSC), for an infusion. The infusion is to stop any further deterioration of my bones. It was a three day infusion over four hours. I am praying it works. If it does I will get it every four months.
I know God has plans for me and I will keep standing in my faith, trusting in his plan. God is my healer and I will cry out to him in my pain because I know he will heal me. Please pray for me. There is power in prayer.