As of February 20th, it has been 4 years since my diagnosis of Pre-B cell ALL Leukemia.
I would like to thank my family for always being by my side fighting this battle with me. This diagnosis didnt onmy affect me, but the closest people around me as well.
I also want to thank God for guiding ne and giving me the strength to fight the battle.
Without God and my family by my side, I dont know how I would be able to handle this.
Yesterday, I came home from school and my mom said she had something for me. She pointed to T.V. stand where there was a clear bag. I was confused about what it was until, I realized that it was……MY PORT! I was so excited! It is a memory I get to keep. It symbolizes all I have went through and the end of a part of my journey. IT IS SO AMAZING! God is good, and I am so thankful that he has been by my side. As well as giving me my family to walk this journey with me.
Friday I had a cancer doctor appointment. Everything looked great, but I got so excited when…… Arlene, my mom, and I talked about getting my Port out!!!!! Talk about EXCITING!!!!
The Month of September is Childhood Cancer Awareness Month. Unfortunately, I know to much about this. I feel like no child should have to go through this.
Here are some statistics you may not havd known.
•Everyday 46 children will be diagnosed with cancer.
•A child is diagnosed every 2 minutes worldwide.
• Childhood cancer is the leading cause of death by disease in children under the age of 15 in the U.S.
• Childhood Cancer is vastly and constantly underfunded. Childhood Cancer on gets 4% of funding.
• One in 285 children in the U.S. will be diagnosed with cancer by the time they are 20 years old.
To be honest, that is very saddening.
Childhood Cancer effects not only the person who has it, but the entire family. I know this first hand, as of June 10, 2016 I am one year Cancer free. For 3 years I endured cancer treatment and the side effects that come with it. Till this day, I still have many side effects. I will fight for all my fellow warriors! Cancer is something no child should ever have to endure. We should not have to have our childhood taken away to deal with something so horrible. We take medicine to heal us everyday that makes us not feel so well, but we dont complain because we want to get better. All the kids I see at the clinic have a glowing smile on there face even though they are fighting this monster. I have lost to many friends and fighters to this deadly disease. It is time to stand up and take a stand. We need to fight for the children that are our future.
Yesterday, I have had my 6 week after surgery appointment with Dr. Kam. He previously told us after 6 weeks out from my replacement I wouldn’t have to wear the brace anymore and we would get new orders for physical therapy.
When we went to my appointment yesterday he said that I don’t need the brace anymore, except for when school starts to make people more aware. He also said I can start to move it just no pushing, pulling, lifting, or putting it behind my back. He gave us some new protocol to follow for physical therapy. He helped me active assistively move my arm. At the end of the visit, we looked at the x-rays he had taken when we got there. My shoulder replacement looks amazing, everything is lining up properly and nothing is hurt or damaged. It looks really nice and clean.
I am so thankful for all the people who have supported me and helped me get through this. Especially, with all I have been dealing with lately. I am so happy with all my progress I have made. I have been working hard and trying to not push myself but not slack off at the same time. I thank God for supporting and being by my side and letting me never lose faith.
So I’m just going to be real, everything isn’t all sunshine and rainbows as it may seem. I am may seem so brave and strong, but truth be told I’m not always that strong girl. Honestly, I am tired and frustrated right now. I am sick and tired of cancer! I may be done with treatment, but now I will have long term side effects for the rest of my life. Chemotherapy killed the cancer, but now I am stuck with fixing everything it messed up. I am frustrated with everything I have to endure and go through. I am tired of being in pain and taking pain medication. It wears down my body. I have been through so much and don’t want to go through anything else. I feel like no one understands, my family gets it but at the same time doesn’t get it. Even though they don’t always get it, I thank them for their support. Whenever there is a teen scene with Candlelighters, I am not feeling well or worn out. I really need to talk to other teens that have been through what I have been through.
Right now, I really need prayer! I don’t want to go into a deep depression over this. I just really need you guys to pray for me right now. I am just going through some things. Your prayers are so greatly appreciated! I know God will help me through this, I just need to have faith in him.
Hello guys! I want to share with you my week. Although, I wasn’t feeling well one day, the rest of the week was great. God was with me all week as I commuted to school; I was having some problems with motion sickness. I enjoy school and learning new things. I am so thankful that I have the opportunity to go to school and have the joy of learning. My teachers are so sweet and supportive. I love my school and can’t wait to see what Sophomore year holds for me next school year.
Hey guys! I need some prayers for my nerves. Even though my shoulder replacement surgery is in late June, I am getting nervous. I believe it’s the devil trying to get me to back down. I have prayed about this surgery for so long and I know that God wants me to do this. These nerves are not enough to get me to back out. I am just nervous about all the cons and I am so young, almost sixteen. I know God has a plan for my life and this surgery. I will continue to lean on him. I just need some prayers for my nerves and that God will take over my nerves, he has already has my life. I thank God for always being by my side and always comforting me. I know my doctor wouldn’t do anything on me he wouldn’t do on himself. I am going to pray to God about my nerves. I ask that you guys pray for me as well! Love you guys lots, talk to you soon!
“I can do all things through Christ who strengthens me” Philippians 4:13 ??
I have been trying to find the words to express how I am feeling with the loss of an amazing warrior. In March, we lost another strong cancer fighter, Cooper. Cancer is a monster and it doesn’t ask your permission to take over your life.
I truly miss Cooper dearly. He fought so hard and always kept faith and smiled throughout it all. He had such a huge smile on his face throughout all of his journey, no matter the circumstance. Cancer is the worst thing I have ever went through and wouldn’t wish it on my worst enemy. Seeing all these warriors fighting is amazing. They are so strong and Cooper was just as strong. He was kind – hearted, caring, strong, an amazing son, wonderful brother, friendly, and a huge inspiration! Him not being here is so hard, especially for his family and all who were close to him. I didn’t know him personally, but we did talk many times and he was so sweet.
I am heartbroken that he is gone, I can’t even imagine what his family is going through. I know he would want everyone who came in contact with him to remember the good times they had, the smiles he brought, and how hard he fought. I know he is looking down on his family and friends smiling down on them. I know he is touched by the wonderful things that were said at the candlelight vigil. Although, he is gone he will never be forgotten. He will forever be embedded into our hearts.
I want to say a prayer for the family. Dear Lord, I ask that you comfort Cooper’s family right now, blanket them in your love. Let them know that you are there for them. Help them to remember that he is no longer suffering and he is looking down on them happy about the way they are honoring and remembering him. Bring peace into their hearts Lord. Let them have peace in knowing that he is with you and not hurting. Send them and Cooper all our love. Jesus in your mighty name, AMEN!!
If you guys feel like God is putting on your heart to help this family here is there Go Fund Me: https://www.gofundme.com/teamcoop
This week, Tuesday the 29th we went to see my shoulder doctor, Dr. Kam. From my bone doctor, we were told my shoulder is closed. So we went and seen Dr. Kam to let him know and see where we are going from here (surgery?).
If you guys haven’t read my post before about my shoulder I ‘ll give you a little background. I went through 2 1/2 years of cancer treatment for Pre-B Cell High Risk Acute Lymphoblastic Leukemia. The steroids and medicine have caused me AVN of both knees and my left shoulder. Due to the a vascular necrosis, my shoulder is pretty much destroyed. I now need a shoulder replacement.
I have been waiting for my growth plate to close so that I am at skeletal maturity and can go ahead with surgery. Well, now I am closed and ready for surgery. We talked about all the complications, what this journey will consist of, and what happens once I go down this road. It is a huge decision deciding to have a shoulder replacement, especially at my age. My huge deciding factor was pain relief.
I thank God over all for being with me through this journey and never leaving my side. I have prayed countless days and nights over what I should do and what is the best decision. I thank him for putting the right people and doctor in my life to take care of me. I am so thankful for my family for being by my side, always taking care of me, and loving me.