Sorry I have been absent for a couple days, I have been recovering from surgery. By the way, everything went amazing! For those who don’t know why I had surgery, I will explain..
Because of the cancer treatments and steroids they gave me, I got something called a vascular necrosis. Which essentially means my bones are dying. I have it in both my knees and my shoulder. In 2015, we had a bone graph done on my right knee. This winter, they did the exact same thing on my left knee. And then, my shoulder ended up collapsing so we had to replace it in 2016.
Back to the surgery update.. I have been doing well since surgery. I am on a pain plan to help combat surgery pain as well as my regular pain. Although, my foot and my ankle are pretty swollen. We talked to the doctor and we are elevating it in a different way now that should help as well as icing. If it gets worse though, we will go to the ER straight away. But as of right now, we are working with our first plan.
Another thing I wanted to say was thank you for all your guys constant prayers and support. I feel as your guys love! Thank you so so so much! PLEASE continue to pray for a speedy recovery and healing.
On June 24,
I went to the DMV to take my permit test. I have taken before and failed by just a little bit, so I was so nervous and anxious. BUT GUESS WHAT!! I passed, I am so proud of myself. I really owe thanks to my family for believing in me, because I really wasn’t sure if I could do this..
Also, June 24th marked my one year after my shoulder replacement surgery. I am so thankful to Dr. Kam for all he has done for me. He is an amazing doctor. An I am so thankful to have had him as my doctor.
Lately, my shoulder has been hurting because I pushed it too far. I think I was rushing things and taking my time to properly stretch it out. It doesn’t help that I don’t go to PT because of some issues. I am left on my own to work it out and have been pushing it too far. I just need to slow down and take it one day at a time. I was so worried that I messed something in my shoulder up, but I grabbed a verse (from my scripture jar a friend made me) that reminded of something. It reads, “The LORD, your God will be with you always. Joshua 1:9” I know God will take care of me. He will never leave me. He knows my pain and he gives me the strength to get through it. HE isn’t only the God of my triumphs, but the God of my struggles as well.
So I know you guys probably read my Wheelchair Raint a little while back, I have an update on that.
For the past 3 weeks I have been walking in school and not using the wheelchair. My wheelchair went out the Sunday before the day I was supposed to go to school. It just gave out. I decided that I would just walk around the school but use the elevator. I wasn’t going to push myself, but I knew I could do it. After the frst day,I felt great. My parents found someone that xould fix the chair but I wanted to walk. I told them I’d pray over it and see what I wanted to do. I felt God telling me to do it amd not to limit myself. That I needed to trust in him and myself, not to doubt him or let anyone doubt me. Ever since then, I have been walking in school. A HUGE ACCOMPLISHMENT FOR ME!!
Yesterday, I have had my 6 week after surgery appointment with Dr. Kam. He previously told us after 6 weeks out from my replacement I wouldn’t have to wear the brace anymore and we would get new orders for physical therapy.
When we went to my appointment yesterday he said that I don’t need the brace anymore, except for when school starts to make people more aware. He also said I can start to move it just no pushing, pulling, lifting, or putting it behind my back. He gave us some new protocol to follow for physical therapy. He helped me active assistively move my arm. At the end of the visit, we looked at the x-rays he had taken when we got there. My shoulder replacement looks amazing, everything is lining up properly and nothing is hurt or damaged. It looks really nice and clean.
I am so thankful for all the people who have supported me and helped me get through this. Especially, with all I have been dealing with lately. I am so happy with all my progress I have made. I have been working hard and trying to not push myself but not slack off at the same time. I thank God for supporting and being by my side and letting me never lose faith.
Hey guys! I’m back!
I just wanted to update you guys on my week. I haven’t had the best week. Although, God got me through! I went to school Monday, but on Tuesday morning I was getting ready for school & I started to feel sick like I was going to throw up. My mom said I need to figure out what I want to do, go to school or stay home. I didn’t want to miss school but I couldn’t make it. I chose to stay home and texted my bus driver. I went to bed and went back to sleep. After, I woke up I still was feeling sick some decided on staying home the rest of the week. On Thursday, I had a IVIG, because my immune system was low. Which really wore me out. Friday, I went to my bone doctor and he took x-rays to see how I am healing. Which is well!! We also talked about which surgery we want to do next. An here we are today, Saturday. I am worn out from the week, but I am thanking God for getting me through the week. All the praise to God! My teacher came over to help get me caught up on school work, which I really appreciated. I am almost all caught up, so that’s good! Now I am writing to you all. I hope your guys week was amazing! If not, I pray that next week it will be better. Whatever you are struggling with, may God help you through it. I love you all! I hope you enjoy your night! Hold you family tight! An thank God for all he has given to you! Goodnight!
In January, I went for my first check up since my knee surgery.
For all who don’t know, because of the chemo and steroids I ended up with necrosis of my bones. My bones have started to die in both of my legs and my left shoulder is no longer there. Due to all the damage, I now need surgeries to remove the dead bone in my knees and a shoulder replacement. On December 21, 2015, I had my first surgery to correct this. We started with my right leg, because it was hurting me the most out of both of my knees.
We found out that I would be seeing another doctor at my check up because my doctor was on indefinite leave. Mr. Stewart was very nice! He checked my leg and took the dressing off. He said my incision is healing very nicely and is almost closed completely! Oh, guess what!!!!….. He also said that I could start putting a little more weight on my leg!! I was so excited to hear that all is healing well!
Without God and my amazing family, I could have never made it through all I have been through! I am so thankful and grateful! God is my strength, when I am weak and weary he carries me through. He stands by my side and is with me every step of the way! “I can do all things through Christ who strengthens me.” Philippians 4:13
Lastly, I have a prayer request. I mentioned my doctor was on indefinite leave. Well, a health issue has come up and she has to take care of herself. Please, pray for her and her health! May God be by her side and watching over her as she deals with. Comfort her and her family as they walk this journey. Give all people who come in contact to help her the knowledge. In Jesus’ Mighty Name, AMEN!! I love you Dr. DeRoode!!
Last week, Wednesday, I went to see a specialist about my shoulder and replacing it.
While I was on chemo I was also taking steroids as a part of my treatment. Which caused bone necrosis in my left shoulder and both knees. My shoulder has now collapsed and is no longer there. It causes me extreme amounts of pain. Because my shoulder is so bad my options are very limited. Dr. Kam basically told my parents and I that I have two options: 1. Leave the shoulder as it is. Or 2. Do the shoulder replacement and use the smallest replacement. We definitely want to go with the replacement but. neither have that great of an outcome.
He said, “Kids think oh well my arm is better so I can go an play baseball or something. Because kids are more active their replacements wear out quickly.”
He then asked my hobbies which are writing, reading, art, crocheting, blogging, and much more. Dr. Cam told me those are good hobbies because my arm won’t be moving in crazy ways that will wear it out easy. He does want to give me some range of motion back which right now I have close to non.
I shared my concern of being worried about how long the replacement will last. He responded, “That is a good worry to have. It tells me that you will take care of your shoulder after surgery.”
My growth plate is still open and Dr. Kam said as soon as they close he can do the surgery. About 3 months maybe longer, it is almost closed though. He will have a mature bone so during surgery he can treat my shoulder like an adult bone.
He showed us the replacement. It will have a really short stem that will go down in the bone and a round head that sits where the dead bone was. The surgery will be about an hour and a half. I will be in the hospital for two days and he will stitch it up on the inside so I can take a shower when I get home. I will wear a sling to protect the Rotator Cuff because he has to cut through it to put the replacement in. Recovery will be about six to eight months.
It is hard to hearing all of this news. I am almost 15 and I shouldn’t be dealing with this. God didn’t bring me this far to leave me now. I continue you to have faith in him and it will not waiver.