So like I have said before, my surgery went well, but afterwards, I ended up with an abscess. Which than caused my whole incision to open up. I was put on antibiotics to clear that up which it did, thank God. After that whole thing happened, my incision had trouble healing back up. So we were on watch for that and were going to the doctor every 1-2 weeks. Well now, my incision is looking good and the bone graft that they did is settling in well.
It is always nerve wracking and scary when you go in for surgery because there can always be complications. I thank God for keeping his arms around all the doctors, nurses, and anyone who came in contact with me. He knew what he was doing when he had all those doctors and nurses lined up to work on.
I have been doing weight bearing and walking around quite a bit, no more walker/crutches or full leg brace. Although, I am still in a wheelchair during school because my mom doesn’t want me doing a full day of walking yet. Maybe in another month or so I can start trying to do a full day of walking since I can walk around in the grocery store now. Its all about timing. I give it up to God and when he thinks I am ready he will let us know.
As of February 20th, it has been 4 years since my diagnosis of Pre-B cell ALL Leukemia.
I would like to thank my family for always being by my side fighting this battle with me. This diagnosis didnt onmy affect me, but the closest people around me as well.
I also want to thank God for guiding ne and giving me the strength to fight the battle.
Without God and my family by my side, I dont know how I would be able to handle this.
Yesterday, I came home from school and my mom said she had something for me. She pointed to T.V. stand where there was a clear bag. I was confused about what it was until, I realized that it was……MY PORT! I was so excited! It is a memory I get to keep. It symbolizes all I have went through and the end of a part of my journey. IT IS SO AMAZING! God is good, and I am so thankful that he has been by my side. As well as giving me my family to walk this journey with me.
This Thanksgiving was wonderful! My mom made amazing food as always! And we got to spend it together. We also had been putting things were thankful for throughout the year in a jar and finally read them all. I thank God for giving me my family and along with allowing me to wake up everyday. I also thank God for the journey I have went through, it has made me stronger and my family stronger and closer. Also for the mistakes I have made that have been lessons for me.
One thing, I want you to remember is that you may not have much, but there is always something to be thankful for. If you wake to see another day be thankful….
I hope everyone had a great Thanksgiving!
So I know you guys probably read my Wheelchair Raint a little while back, I have an update on that.
For the past 3 weeks I have been walking in school and not using the wheelchair. My wheelchair went out the Sunday before the day I was supposed to go to school. It just gave out. I decided that I would just walk around the school but use the elevator. I wasn’t going to push myself, but I knew I could do it. After the frst day,I felt great. My parents found someone that xould fix the chair but I wanted to walk. I told them I’d pray over it and see what I wanted to do. I felt God telling me to do it amd not to limit myself. That I needed to trust in him and myself, not to doubt him or let anyone doubt me. Ever since then, I have been walking in school. A HUGE ACCOMPLISHMENT FOR ME!!
This last Friday at physical therapy was and reevaluation day. I am so excited to tell you guys what happened.
So Friday at physical we had to do a rereevaluation. My therapist Natalie tested my active and active/passive range of motion. I am so excited with how far I have come after my half shoulder replacement surgery.
We started with my normal routine and then started with the evaluation. We tested my active range of motion, which is me moving/lifting my arm by myself. Going straight out front I got to 90°, to the side I got to 78°, and with my arm my side bent at at the elbow I got 0° (and we’re only aloud to go to 30°). We then did some active/passive table stretching. Going straight out to the front she stretched me out to 122°, going out to the side she got me to 120°, and with my arm by my side with my arm bent pushing it outward she got me to 16° (and we’re only aloud to go to 30°).
I am beyond proud of myself! I am can’t believe how far I have come! I am so thankful to all the people who pushed me, helped me, and believed in me. I have worked so hard to get where I am today. I thank God for never leaving me and standing by me throughout everything.
Here is an update on physical therapy and how it is going.
I am making a lot of progress in physical therapy. I have stopped gaurding and have let loose. I get into my head when i am at physical therapy and start to tighten up.
Today though, I did really great! My motion up to 90° is doing great! My shoulder is healing well and my motion is doing well. My degree measurement is almost at 90° at all angles which is a huge accomplishment. My pain level has also decreased and I am not taking as much pain medicine. I am so thankful for that.
I am so proud of myself for working so hard! I thank God for helping me work through this. I also thank Natalie and Morgan for working with me at physical therapy. They make physical therapy so much fun. He is my strength and has been getting me through all of this. I have to just keep my faith in him as I gi through this. I also thank my family for supporting me. They are always encouraging me.
Hey guys! I am so sorry I am updating so late. It has been crazy since I got out of the hospital. I have been on heavy medicine, which causes me to sleep a lot.
I have been doing well though. The surgery was a success and everything went well. Thanks to Dr. Kam, my amazing doctor and surgeon. I am now two weeks out from surgery. I started physical therapy right away, only doing passive movements. Which means I can’t move my arm by myself.
For a little back story; due to the AVN the steroids and cancer treatments caused, I had to under go surgery. From the AVN, my shoulder began to collapse. It had went so far that my last two options were having a half shoulder replacement or using a cadaver. So, knowing this I prayed about it. After praying for a week or so, I felt like God was telling me to continue with the shoulder replacement.
Through this process, I thank God for helping me through this journey so far and being by my side! He gives me the strength to get through everything I have gone through. Just like my bible verse that helped me through my cancer, “I can do all things through Christ who strengthens me.” With God by my side I can do or go through anything! I would also like to thank everyone who has stood by my side and supported me! Especially my family, they have always been right by my side cheering me on. I am so thankful for that! They love me to death and I love them too! They do anything to cheer me up and put a smile on my face! Another person whose support I am thankful for is my best friend Natalie. Even though she lives many miles away in California, she supports me lots. Our talks help calm me down and know that I can get through this. I love her lots and am thankful for a bestie like her!
Happy Sibling’s Day! I want to say happy sibling’s day to my wonderful sister and brother!
I am so thankful for my two amazing sibling’s! They are so wonderful! We have our share fair of fights, but ultimately I love them no matter what! I am so proud of you guys in school, your maturity, and how much you have grown! I couldn’t of asked for better siblings. You both each have a lovely personality that makes you both unique and YOU! I love watching you guys grow and watching your faith in God grow. You guys are going to grow up and do amazing things, I just know it! I thank God for giving me such awesome siblings! No matter what I will always love them and be there for them!
This week, Tuesday the 29th we went to see my shoulder doctor, Dr. Kam. From my bone doctor, we were told my shoulder is closed. So we went and seen Dr. Kam to let him know and see where we are going from here (surgery?).
If you guys haven’t read my post before about my shoulder I ‘ll give you a little background. I went through 2 1/2 years of cancer treatment for Pre-B Cell High Risk Acute Lymphoblastic Leukemia. The steroids and medicine have caused me AVN of both knees and my left shoulder. Due to the a vascular necrosis, my shoulder is pretty much destroyed. I now need a shoulder replacement.
I have been waiting for my growth plate to close so that I am at skeletal maturity and can go ahead with surgery. Well, now I am closed and ready for surgery. We talked about all the complications, what this journey will consist of, and what happens once I go down this road. It is a huge decision deciding to have a shoulder replacement, especially at my age. My huge deciding factor was pain relief.
I thank God over all for being with me through this journey and never leaving my side. I have prayed countless days and nights over what I should do and what is the best decision. I thank him for putting the right people and doctor in my life to take care of me. I am so thankful for my family for being by my side, always taking care of me, and loving me.