My New Goal

For Junior year I want to set a goal for myself of walking into high school. I just want that experience of walking into high school. It is something that people take for granted, but for me it is a huge thing. Since the beginning of freshman year, I have used my electric wheelchair. Only walking around the classroom due to not being able to walk long distances. Even at the Baby Bulldog Breakfast for freshman-thatwas held before school started-I was in a wheelchair.

I want to set a goal, as far as strengthening goes for my next knee surgery. My next knee surgery will hopefully be next summer, after my half shoulder replacement surgery this summer. I want to do everything to heal properly and strengthen my knee to get to my goal. My goal is to be in the chair for the summer and the beginning of school. Although, after 4 months after school starts I would like to walk in with a walker. For me that is a huge experience. I will be praying for what God has in store. I will pray for strength in going through that process.

Walking is something all of us take for granted. When that is taken away or limited, you really realize how much you miss it and how wonderful it is. I want to experience walking into high school. Whether it be just walking in using a walker, walking in and then getting back in the chair, or walking in and not using anything I don’t care. Even if I have to wait until the end of the year or until Senior year, I will be thankful to walk into school because walking is a gift. So next time you see someone using a wheelchair, using crutches, using a walker, or anything else don’t give them a weird look. Wonder what it’s like to be in their shoes, offer to help them, or even open a door for them.

The necrosis, the steroids and chemotherapy caused, has temporarily taken away walking from me. I may be able to walk short distances, but I walk with pain almost every day, whether the pain is a 1 or a 10. It has taken my ability to take a hike, walk around the block, and so much more. I will not let it defeat me or get me down! I will rise up and work towards making those few steps into high school, into the grocery store, into the mall, around the block, etc.!

 

A Rough Few Days

The three day infusions I have for my bones really drains me. Although, they have made it a 2 hour infusion, instead of 4. It is still very hard on my body. It wears me out and my body out. I get so tired and drained. So, this weekend I am just resting. Can I get some prayers guys. This is so draining and with the motion sickness/not feeling well I have going on, it’s so hard. I just ask that you guys pray for my strength and energy this upcoming school week. God has always helped me and he will get me through this week.

“I can do all things though Christ who strengthens me.”                                 Philippians 4:13

 

Pre-Surgery Jitters

Hey guys! I need some prayers for my nerves. Even though my shoulder replacement surgery is in late June, I am getting nervous. I believe it’s the devil trying to get me to back down. I have prayed about this surgery for so long and I know that God wants me to do this. These nerves are not enough to get me to back out. I am just nervous about all the cons and I am so young, almost sixteen. I know God has a plan for my life and this surgery. I will continue to lean on him. I just need some prayers for my nerves and that God will take over my nerves, he has already has my life. I thank God for always being by my side and always comforting me. I know my doctor wouldn’t do anything on me he wouldn’t do on himself.  I am going to pray to God about my nerves. I ask that you guys pray for me as well! Love you guys lots, talk to you soon!

“I can do all things through Christ who strengthens me” Philippians 4:13 ??

Remembering Cooper

I have been trying to find the words to express how I am feeling with the loss of an amazing warrior. In March, we lost another strong cancer fighter, Cooper. Cancer is a monster and it doesn’t ask your permission to take over your life.

I truly miss Cooper dearly. He fought so hard and always kept faith and smiled throughout it all. He had such a huge smile on his face throughout all of his journey, no matter the circumstance. Cancer is the worst thing I have ever went through and wouldn’t wish it on my worst enemy. Seeing all these warriors fighting is amazing. They are so strong and Cooper was just as strong. He was kind – hearted, caring, strong, an amazing son, wonderful brother, friendly, and a huge inspiration! Him not being here is so hard, especially for his family and all who were close to him. I didn’t know him personally, but we did talk many times and he was so sweet.

I am heartbroken that he is gone, I can’t even imagine what his family is going through. I know he would want everyone who came in contact with him to remember the good times they had, the smiles he brought, and how hard he fought. I know he is looking down on his family and friends smiling down on them. I know he is touched by the wonderful things that were said at the candlelight vigil. Although, he is gone he will never be forgotten. He will forever be embedded into our hearts.

I want to say a prayer for the family. Dear Lord, I ask that you comfort Cooper’s family right now, blanket them in your love. Let them know that you are there for them. Help them to remember that he is no longer suffering and he is looking down on them happy about the way they are honoring and remembering him. Bring peace into their hearts Lord. Let them have peace in knowing that he is with you and not hurting. Send them and Cooper all our love. Jesus in your mighty name, AMEN!!

If you guys feel like God is putting on your heart to help this family here is there Go Fund Me: https://www.gofundme.com/teamcoop

 

Shoulder Replacement Update

This week, Tuesday the 29th we went to see my shoulder doctor, Dr. Kam. From my bone doctor, we were told my shoulder is closed. So we went and seen Dr. Kam to let him know and see where we are going from here (surgery?).

If you guys haven’t read my post before about my shoulder I ‘ll give you a little background. I went through 2 1/2 years of cancer treatment for Pre-B Cell High Risk Acute Lymphoblastic Leukemia. The steroids and medicine have caused me AVN of both knees and my left shoulder. Due to the a vascular necrosis, my shoulder is pretty much destroyed. I now need a shoulder replacement.

I have been waiting for my growth plate to close so that I am at skeletal maturity and can go ahead with surgery. Well, now I am closed and ready for surgery. We talked about all the complications, what this journey will consist of, and what happens once I go down this road. It is a huge decision deciding to have a shoulder replacement, especially at my age. My huge deciding factor was pain relief.

I thank God over all for being with me through this journey and never leaving my side. I have prayed countless days and nights over what I should do and what is the best decision. I thank him for putting the right people and doctor in my life to take care of me. I am so thankful for my family for being by my side, always taking care of me, and loving me.

Prayer & Support for Our Warriors

So, this week has been rough. Monday would have been my uncles 30th birthday, but he is no longer here with us. Along with that, a sweet cancer fighter lost her battle. Then, after that I got more terrible news my friend who also is Battling Cancer isn’t doing to well, his name is Cooper. Please pray for him and all the other children in the world who are fighting this horrible disease called CANCER!  I’m asking everyone will you please help my friend Cooper & his family. They have been in the Hospital for over 100 days, If you can donate at least $1, Cooper’s family and I would appreciate it just click on the link:  https://www.gofundme.com/teamcoop

I have been hurting a lot this week. Although, I have been hurting God has been by my families side and all the other families side as well. He is helping us through these heart breaking days. God had a special plan for these wonderful peoples lives and now he doesn’t want them to suffer any more. I trust in God’s plan, but sometimes you can’t help but wonder why…. God’s plan and mission is always bigger than ours and only he knows what it en-tells. I thank God for these lovely people in our lives and the lives they have touched.

Lord, I pray for all the families that are grieving at this time lord. Comfort them and blanket them in peace and your love. Lay your hand on their heart and help them get through this. Help them understand that they won’t be suffering anymore. Let your light shine in their lives. All things happen for a reason, let this reason be known to the families. Let the families know their angels are watching them, are proud of them and love them so very much. I pray this in your name, AMEN!!!

My Week Summed Up

Hey guys! I’m back!

I just wanted to update you guys on my week. I haven’t had the best week. Although, God got me through! I went to school Monday, but on Tuesday morning I was getting ready for school & I started to feel sick like I was going to throw up. My mom said I need to figure out what I want to do, go to school or stay home. I didn’t want to miss school but I couldn’t make it. I chose to stay home and texted my bus driver. I went to bed and went back to sleep. After, I woke up I still was feeling sick some decided on staying home the rest of the week. On Thursday, I had a IVIG, because my immune system was low. Which really wore me out. Friday, I went to my bone doctor and he took x-rays to see how I am healing. Which is well!! We also talked about which surgery we want to do next. An here we are today, Saturday. I am worn out from the week, but I am thanking God for getting me through the week. All the praise to God! My teacher came over to help get me caught up on school work, which I really appreciated. I am almost all caught up, so that’s good! Now I am writing to you all. I hope your guys week was amazing! If not, I pray that next week it will be better. Whatever you are struggling with, may God help you through it. I love you all! I hope you enjoy your night! Hold you family tight! An thank God for all he has given to you! Goodnight!

Today Was a Great Day!

I am so thankful to God for waking me up today! I have been battling my sinus’ and because of them I haven’t been feeling well. It gives me really bad headaches from the presser on my forehead and stuffy nose/runny nose. In general, when I’ve woken up these past weeks I have not been feeling well. I thank God though, for giving me the strength to get through today. He is ultimately my strength, and I lean on him when I feel weak. Remember, God will always be there when you need him. He is with through each step of each day.

Today was a wonderful day, I enjoyed school! I am thankful that He gives me the strength to persevere through each and every day! May God be with you each and every day! May you have the strength to call on Him when you need Him. Thank Him for all He does! Have faith that He will carry you through!

What a Great Day!

Yesterday, I had a great day! Although, I didn’t feel well. I thank God for getting me through yesterday and everyday!

As I am on the bus this afternoon, I thinking about how blessed I am! An what an amazing God I have!
This morning I wasn’t feeling well, but I knew I could push through today. I asked my parents and sister to pray for me and they did. I MADE IT THROUGH TODAY! I beyond proud of myself! I give God all the glory! When I am weak and weary he carries me and he definitely did today! With all I have going on, I continue to persevere through it all! I have so much support from my loving family and friends! I thank God for you all! I thank God for being by my side every step of each and every day!