On June 24,
I went to the DMV to take my permit test. I have taken before and failed by just a little bit, so I was so nervous and anxious. BUT GUESS WHAT!! I passed, I am so proud of myself. I really owe thanks to my family for believing in me, because I really wasn’t sure if I could do this..
Also, June 24th marked my one year after my shoulder replacement surgery. I am so thankful to Dr. Kam for all he has done for me. He is an amazing doctor. An I am so thankful to have had him as my doctor.
As of February 20th, it has been 4 years since my diagnosis of Pre-B cell ALL Leukemia.
I would like to thank my family for always being by my side fighting this battle with me. This diagnosis didnt onmy affect me, but the closest people around me as well.
I also want to thank God for guiding ne and giving me the strength to fight the battle.
Without God and my family by my side, I dont know how I would be able to handle this.
Yesterday, I came home from school and my mom said she had something for me. She pointed to T.V. stand where there was a clear bag. I was confused about what it was until, I realized that it was……MY PORT! I was so excited! It is a memory I get to keep. It symbolizes all I have went through and the end of a part of my journey. IT IS SO AMAZING! God is good, and I am so thankful that he has been by my side. As well as giving me my family to walk this journey with me.
Yay! My port is out! I went in yesterday afternoon for the surgery. I was a bit nervous, but the excitement took over. This is a huge step in my journey! It to me, signifies the end, like the real end. I am so happy and thankful to all the people who have walked this journey with me. An the people who have encouraged me and lifted me up. Everyone who has fought right along side me, especially my family who has never left me! All the glory goes to God! In him anything is possible, you just need to believe and put your faith in him! “I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME.” Philippians 4:13
Pictures – (top: after surgery; bottom: before surgery with a stuffed animal the lady who got me settled gave me)
Pictures – (My family and I waiting in the waiting room to be called back; top: me, mom, & sister; bottom: dad and brother)
Today at school, I got a game called Bulldawgopoly (like monopoly). Teachers were given them to give to one special student. When I went into my Photography class I noticed my teacher hadn’t given hers away yet. Another student and I admired it at the beginning of the class. Later in the period, I talked to the teacher about it and told her I really liked it. She is like “I am going to give it to you just don’t show it to the kids in the class, get it before you leave.”
As I left class early I grabbed it. I went to my next class but the door was locked so I sat on the floor admiring the game. I noticed a story on the back and read it. It talked about a girl who found out she had an inoperable brain tumor called ganglioglioma on May 19, 2011 at 15 years old. The parents searched for a cure and found The Burzynski clinic. It was starting trials that had a 70% success in stopping the growth ot reducing all types of cancers. After only having less than a 1% chance of living 5 years, her parents pursued the clinic. The cost was an issue though, insurance only covers a small portion of the $8000 a month cost. That is when the ideal for Bulldawgopoly came in. 100% of the sales of this game go directly towards Kassidy’s cancer treatments. How amazing that they are doing this for her.
The website on the box is www.lateforthesky.com
Please check it out.
This last Friday at physical therapy was and reevaluation day. I am so excited to tell you guys what happened.
So Friday at physical we had to do a rereevaluation. My therapist Natalie tested my active and active/passive range of motion. I am so excited with how far I have come after my half shoulder replacement surgery.
We started with my normal routine and then started with the evaluation. We tested my active range of motion, which is me moving/lifting my arm by myself. Going straight out front I got to 90°, to the side I got to 78°, and with my arm my side bent at at the elbow I got 0° (and we’re only aloud to go to 30°). We then did some active/passive table stretching. Going straight out to the front she stretched me out to 122°, going out to the side she got me to 120°, and with my arm by my side with my arm bent pushing it outward she got me to 16° (and we’re only aloud to go to 30°).
I am beyond proud of myself! I am can’t believe how far I have come! I am so thankful to all the people who pushed me, helped me, and believed in me. I have worked so hard to get where I am today. I thank God for never leaving me and standing by me throughout everything.
This morning, I had physical therapy. I couldn’t wait for it because of getting new orders from my shoulder surgeon, Dr. Kam.
As soon as I walked in, they noticed I didn’t have the brace on. I then told them how excited I was and that I had new protocol for them. Some new exercises were added with new orders. With these new orders, comes harder work outs. Today, those exercises really kicked my butt! Lol! Today we added pullies and a bar exercise the stretches out my arm. I was really worked out today! Added these new exercises, I really need to stay on to of my pain medication.
Although, I was in pain after physical therapy I am glad to be at this point in my journey. I am so proud of myself and how hard I have worked! It is the little victories! I am thankful my arm is doing well enough to increase my exercises. I thank my family, friends and everyone who has supported me! I thank God for giving me the strength to endure these things!
(Boy am I sore though! They really kicked my booty!)
Yesterday, I have had my 6 week after surgery appointment with Dr. Kam. He previously told us after 6 weeks out from my replacement I wouldn’t have to wear the brace anymore and we would get new orders for physical therapy.
When we went to my appointment yesterday he said that I don’t need the brace anymore, except for when school starts to make people more aware. He also said I can start to move it just no pushing, pulling, lifting, or putting it behind my back. He gave us some new protocol to follow for physical therapy. He helped me active assistively move my arm. At the end of the visit, we looked at the x-rays he had taken when we got there. My shoulder replacement looks amazing, everything is lining up properly and nothing is hurt or damaged. It looks really nice and clean.
I am so thankful for all the people who have supported me and helped me get through this. Especially, with all I have been dealing with lately. I am so happy with all my progress I have made. I have been working hard and trying to not push myself but not slack off at the same time. I thank God for supporting and being by my side and letting me never lose faith.
Here is an update on physical therapy and how it is going.
I am making a lot of progress in physical therapy. I have stopped gaurding and have let loose. I get into my head when i am at physical therapy and start to tighten up.
Today though, I did really great! My motion up to 90° is doing great! My shoulder is healing well and my motion is doing well. My degree measurement is almost at 90° at all angles which is a huge accomplishment. My pain level has also decreased and I am not taking as much pain medicine. I am so thankful for that.
I am so proud of myself for working so hard! I thank God for helping me work through this. I also thank Natalie and Morgan for working with me at physical therapy. They make physical therapy so much fun. He is my strength and has been getting me through all of this. I have to just keep my faith in him as I gi through this. I also thank my family for supporting me. They are always encouraging me.
So I’m just going to be real, everything isn’t all sunshine and rainbows as it may seem. I am may seem so brave and strong, but truth be told I’m not always that strong girl. Honestly, I am tired and frustrated right now. I am sick and tired of cancer! I may be done with treatment, but now I will have long term side effects for the rest of my life. Chemotherapy killed the cancer, but now I am stuck with fixing everything it messed up. I am frustrated with everything I have to endure and go through. I am tired of being in pain and taking pain medication. It wears down my body. I have been through so much and don’t want to go through anything else. I feel like no one understands, my family gets it but at the same time doesn’t get it. Even though they don’t always get it, I thank them for their support. Whenever there is a teen scene with Candlelighters, I am not feeling well or worn out. I really need to talk to other teens that have been through what I have been through.
Right now, I really need prayer! I don’t want to go into a deep depression over this. I just really need you guys to pray for me right now. I am just going through some things. Your prayers are so greatly appreciated! I know God will help me through this, I just need to have faith in him.