So, this week has been rough. Monday would have been my uncles 30th birthday, but he is no longer here with us. Along with that, a sweet cancer fighter lost her battle. Then, after that I got more terrible news my friend who also is Battling Cancer isn’t doing to well, his name is Cooper. Please pray for him and all the other children in the world who are fighting this horrible disease called CANCER! I’m asking everyone will you please help my friend Cooper & his family. They have been in the Hospital for over 100 days, If you can donate at least $1, Cooper’s family and I would appreciate it just click on the link: https://www.gofundme.com/teamcoop
I have been hurting a lot this week. Although, I have been hurting God has been by my families side and all the other families side as well. He is helping us through these heart breaking days. God had a special plan for these wonderful peoples lives and now he doesn’t want them to suffer any more. I trust in God’s plan, but sometimes you can’t help but wonder why…. God’s plan and mission is always bigger than ours and only he knows what it en-tells. I thank God for these lovely people in our lives and the lives they have touched.
Lord, I pray for all the families that are grieving at this time lord. Comfort them and blanket them in peace and your love. Lay your hand on their heart and help them get through this. Help them understand that they won’t be suffering anymore. Let your light shine in their lives. All things happen for a reason, let this reason be known to the families. Let the families know their angels are watching them, are proud of them and love them so very much. I pray this in your name, AMEN!!!
Hey guys! I want to tell you about a great ideal I had! I noticed that my high school did something for Breast Cancer and also when Paris was attacked. I started to think, since September is Childhood Cancer month I would love for them to do something to support it.
My ideal is that everyone can wear fun, bright colored socks for the month in honor of the spirits of the kids fighting. Also to make a banner and hang it in the quad. Then I could make and sell cancer ribbon shaped chocolate (like my family and I did one year) and give the money raised to a cancer foundation. I really want to MAKE A DIFFERENCE in the world! Not everyone understands what I and other kids and teens like me have and are going through in this battle. It would be great to raise awareness for something that means so much to me!! I want to use my testimony to tell people how great God is and give people incite on what I went through.
November 2015 I went to the clinic and had labs drawn. We also talked about pain management with my possible upcoming surgery. A woman named Angela came and talked to me a boy alternative methods other than pharmaceuticals. Like raki, guided imagery, patches, etc. It was so nice to meet her, my mom and I both felt a vibe from her like she was the one who is supposed to be here to help me. God brings the right people into our lives to help us, teach us, mentor us, and so much more. My mom told Angela that I operate at a pain level of a 7 all day everyday. Angela said that she has people who are at a 3 and can barely get out of bed. I give ALL the glory to God for being able to keep pushing forward. Without him I have no strength, he is my strength. My family always helps encourage me to keep pushing. God says come to me all who are weary and weak and I will give you rest. When I am weary and weak, I call on him and he carries me the rest of the way and gives me rest. Arlene my doctor answered all our questions we didn’t get answered a month ago on my three day stay clinic visit. Which I am so happy about because I have been having really bad sinus issues. So she put me on a 21-day antibiotic and gave me a nose spray. She also wants to do a CT scan of my head. She said that in my nose it is swollen on one side on a part of the nose. She is so amazing. She also got me my flu shot and my depo shot I needed.
I thank God for such an amazing team of doctors, nurses, Candlelighters crew and so many more people who have become my extended family for taking such good care of me. Also for including my family and making sure they are okay and understand everything. They are so amazing!
My monster, it’s not like any other
It doesn’t hide under my bed
Or in my closet
It hides somewhere much worse
You would never guess
It’s in my body finding places to hid and making me sick
Its’ name is Childhood Cancer
I battle everyday day to rid my body of my monster
Praying one day it will be gone for good.
I battled cancer, ALL Leukemia, for two and a half years. It was the hardest thing I have ever been through!
The chemo and steroids did have minor side effects. For example, mouth sores, mood swings and being nauseous, etc. But, there are long term side effects that I have even after I finished chemo. From the steroids I now have a vascular necrosis in both knees and my left shoulder. My shoulder is collapsed. My only options are leave the shoulder as is or do the shoulder replacement and use the smallest one possible.
Lately, I have been in constant unbearable pain and nothing helps. I am on heaving medication and that isn’t helping. I can’t sleep and my pain is 10/10 all of the time.
A couple weeks ago I went to my clinic, Children’s Specialty Center (CSC), for an infusion. The infusion is to stop any further deterioration of my bones. It was a three day infusion over four hours. I am praying it works. If it does I will get it every four months.
I know God has plans for me and I will keep standing in my faith, trusting in his plan. God is my healer and I will cry out to him in my pain because I know he will heal me. Please pray for me. There is power in prayer.
This past week I went to Disneyland.
A friend of mine, Gabriele, asked me to stop by a flower bed where she spread her daughters ashes. She lost her daughter, Leah, to brain cancer. Leah loved going to Disneyland, the Little Mermaid, Ariel and her mom. Leah was her moms little mermaid, her sunshine. Her smile could light up a room. Although I didn’t know her personally she will always hold a special place in my heart and her beautiful mother will too. Gabriele is so strong. An so was her beautiful baby girl. While I was at Disneyland I could feel Leah’s beautiful spirit. I miss her dearly and so does her mother, very much.
Whenever you see a rainbow just remember it is a hello from the beautiful warrior princess Leah. Smiling down from heaven.
June 9, 2015 I went into the clinic for Pentamidine. I am now cancer free as of then.
As my nurse Jeramy finished accessing me and giving me my pre medication, Pastor Doug and Doc Jones walked in. I was extremely surprised! My mom had been out of the room talking with them . I didn’t suspect anything though because, it is usual for her to leave the room and go see other families at the clinic. When she walked in with them I had no ideal what was going on. They then presented my whole family and I with tickets to Disneyland and a one night stay at the Disney hotel! I was so speechless all I could do was smile.
With all my family and I have been through we deserve it. When we do activities we do them together, never separate. If one of my family members or I aren’t feeling well we don’t do anything at all. Because of the side affects from the chemo not going out was often.
I am so appreciative to my church – Valley Bible Fellowship and the Plus one project for doing this for my family and I. We need to just have a fun day to smile, have fun, and not think about cancer. Thank you to my wonderful church and the people who God put on their heart to help us.
Mickey Mouse and the Gang is calling. Hopefully off to Disneyland soon.
Here is the link: https://www.youtube.com/watch?v=10SjNKEzjzk&feature=youtu.be Video is on youtube under Vegas Church, Plus One Minisry – Alyssa Smith
I was diagnosed with Acute Lymphoblastic Leukemia on February 20, 2013. It was a huge shock. The Thursday before I was at the pediatrician and two doctors fought over whether my spleen was large or if I had a lot of muscle. I was in a lot of pain. They said it was just growing pain – I don’t blame them for not knowing.
We were out of school for President’s weekend. When my parents came home I told them I ate but barely took a bite of food. My mom said I had to eat and gave me a small late of food. After I ate, I went to sit on the couch and screamed in pain. My side was hurting and I couldn’t breathe. I was literally in tears. My dad took me to the ER at Sunrise but, it was packed so we drove all the way to Southern Hills Hospital. They drew blood, took my weight, height and symptoms. I was very fatigued, couldn’t breath correctly and lost 20 pounds in a month. They got me set up in a room. I dozed off and was woken up to a nurse trying to move me to another gurney to be transported to Sunrise by ambulance. My mom came in just they were putting in an ER room. The doctor said did he tell you the L word. My mom looked at my dad confused. My dad was convinced it wasn’t that but, it was. I was transferred to the pediatric oncology floor. That night was rough. I was on oxygen and every time I moved I was hurting and screaming in pain. One of my lungs was partially collapsed the other filled with fluid and my spleen enlarged.
The next morning my parents told me the diagnosis. I was overwhelmed with emotions. Being diagnosed with cancer was something I never thought could happen. When I found out it was cancer that was making me so sick I was extremely angry at God. I asked God “why me” several times. One day he came to me and told me that everything would be okay to place my faith in him. Another day He told my sister that I was the strongest one in my family to handle this.
Over the course of the next week, my port was placed (immediately) and chemo was started. I also had a bone marrow and lumbar puncture procedure.
I have gotten on my knees many times and just cried to Him for help. He has been by my side and carries me when I am weak. Through this journey he has taught me faith, trust and to lean on him in my time of need because he is my strength. When I am struck with worry and doubt, I give it all to him and try to remain in faith. The verse that I live by everyday is Philippians 4:13, “I can do all things through Christ who strengthens me.” Even though this is a storm I am going through I have been blessed to wake up every morning and praise Him. With God I am finding the joy in this storm.