Sorry I have been absent for a couple days, I have been recovering from surgery. By the way, everything went amazing! For those who don’t know why I had surgery, I will explain..
Because of the cancer treatments and steroids they gave me, I got something called a vascular necrosis. Which essentially means my bones are dying. I have it in both my knees and my shoulder. In 2015, we had a bone graph done on my right knee. This winter, they did the exact same thing on my left knee. And then, my shoulder ended up collapsing so we had to replace it in 2016.
Back to the surgery update.. I have been doing well since surgery. I am on a pain plan to help combat surgery pain as well as my regular pain. Although, my foot and my ankle are pretty swollen. We talked to the doctor and we are elevating it in a different way now that should help as well as icing. If it gets worse though, we will go to the ER straight away. But as of right now, we are working with our first plan.
Another thing I wanted to say was thank you for all your guys constant prayers and support. I feel as your guys love! Thank you so so so much! PLEASE continue to pray for a speedy recovery and healing.
On July 7, 2017 I went to see Dr. Kam, the doctor who did my half shoulder replacement. I first want to say he is an amazing doctor and I am so thankful to him.
We talked about my range of motion since I last seen him, since I haven’t been in PT, he said it is better than last time. I wasn’t sure if it was because of not being in PT. We also talked about how long ago my surgery was, which is 1 year as of June 24. I am so proud of the progress I have made. We have now worked up to seeing him once a year, of course we can come in sooner if needed. Most of all, I am so proud of my progress. This surgery has taken away my pain, besides a little pain ever so often, and now I can move it without hurting. I thank my family for being by my side through all of this. I also thank God for helping make the decision to go forward with all of that as well as him put his hands on the nurses and surgeons.
Maybe by the next time I need another shoulder replacement, we will some new things we don’t have now..
On June 24,
I went to the DMV to take my permit test. I have taken before and failed by just a little bit, so I was so nervous and anxious. BUT GUESS WHAT!! I passed, I am so proud of myself. I really owe thanks to my family for believing in me, because I really wasn’t sure if I could do this..
Also, June 24th marked my one year after my shoulder replacement surgery. I am so thankful to Dr. Kam for all he has done for me. He is an amazing doctor. An I am so thankful to have had him as my doctor.
Lately, my shoulder has been hurting because I pushed it too far. I think I was rushing things and taking my time to properly stretch it out. It doesn’t help that I don’t go to PT because of some issues. I am left on my own to work it out and have been pushing it too far. I just need to slow down and take it one day at a time. I was so worried that I messed something in my shoulder up, but I grabbed a verse (from my scripture jar a friend made me) that reminded of something. It reads, “The LORD, your God will be with you always. Joshua 1:9” I know God will take care of me. He will never leave me. He knows my pain and he gives me the strength to get through it. HE isn’t only the God of my triumphs, but the God of my struggles as well.
Last night I went to one of my first big outtings in A WHILE! I got free tickets to go to a concert thrown by Fresh Empire that featured DJ So Hype and Miss Mulatto. My sister and I were screaming when the guy told us about the tickets in the first place. I was so excited about it that when I got home, that that night I ordered tickets for my sister, a couple friends, and I to go.
Well it was last night and I had a blast! We danced A LOT, took pictures, listened to Miss Mulatto, and overal enjoyed ourselves! I stood and danced all night long. Mind you this was the longest I have stood for in a while. It didn’t start until 8 and went until 11. As well as danced. I barely danced at my 8th grade dance and was in a wheelchair at Homecoming last year, so I was proud of myself for dancing for that long. I was very proud of myself, my first big outting in a long time. God works in wonderful ways! I thankhim for giving me the strength and energy to get through last night! I also want to thank Fresh Empire for doing this for us teens! Something awesome for us to do instead of being out on the streets all night getting into trouble.
So I know you guys probably read my Wheelchair Raint a little while back, I have an update on that.
For the past 3 weeks I have been walking in school and not using the wheelchair. My wheelchair went out the Sunday before the day I was supposed to go to school. It just gave out. I decided that I would just walk around the school but use the elevator. I wasn’t going to push myself, but I knew I could do it. After the frst day,I felt great. My parents found someone that xould fix the chair but I wanted to walk. I told them I’d pray over it and see what I wanted to do. I felt God telling me to do it amd not to limit myself. That I needed to trust in him and myself, not to doubt him or let anyone doubt me. Ever since then, I have been walking in school. A HUGE ACCOMPLISHMENT FOR ME!!
I strongly dislike being in this electric wheelchair!!! All I want to do is walk! Many people take something as simple as walking for granted. I’m tired of being in this chair. I just want to walk around school, to the store, to the park etc. I want to get my strength back and walk. I am bound to this chair and I don’t like it. Due to the AVN caused by the steroids and Cancer treatments I can’t walk long distances. I don’t like being in a wheelchair. I want to walk anywhere and everywhere like everyone else. It is so simple, but so important to me. At almost 16 years old (In October) I feel like I shouldn’t have to deal with this.
Even though this post is short, thank you for letting me rant about how I feel.
Hey guys! I am so sorry I am updating so late. It has been crazy since I got out of the hospital. I have been on heavy medicine, which causes me to sleep a lot.
I have been doing well though. The surgery was a success and everything went well. Thanks to Dr. Kam, my amazing doctor and surgeon. I am now two weeks out from surgery. I started physical therapy right away, only doing passive movements. Which means I can’t move my arm by myself.
For a little back story; due to the AVN the steroids and cancer treatments caused, I had to under go surgery. From the AVN, my shoulder began to collapse. It had went so far that my last two options were having a half shoulder replacement or using a cadaver. So, knowing this I prayed about it. After praying for a week or so, I felt like God was telling me to continue with the shoulder replacement.
Through this process, I thank God for helping me through this journey so far and being by my side! He gives me the strength to get through everything I have gone through. Just like my bible verse that helped me through my cancer, “I can do all things through Christ who strengthens me.” With God by my side I can do or go through anything! I would also like to thank everyone who has stood by my side and supported me! Especially my family, they have always been right by my side cheering me on. I am so thankful for that! They love me to death and I love them too! They do anything to cheer me up and put a smile on my face! Another person whose support I am thankful for is my best friend Natalie. Even though she lives many miles away in California, she supports me lots. Our talks help calm me down and know that I can get through this. I love her lots and am thankful for a bestie like her!
For Junior year I want to set a goal for myself of walking into high school. I just want that experience of walking into high school. It is something that people take for granted, but for me it is a huge thing. Since the beginning of freshman year, I have used my electric wheelchair. Only walking around the classroom due to not being able to walk long distances. Even at the Baby Bulldog Breakfast for freshman-thatwas held before school started-I was in a wheelchair.
I want to set a goal, as far as strengthening goes for my next knee surgery. My next knee surgery will hopefully be next summer, after my half shoulder replacement surgery this summer. I want to do everything to heal properly and strengthen my knee to get to my goal. My goal is to be in the chair for the summer and the beginning of school. Although, after 4 months after school starts I would like to walk in with a walker. For me that is a huge experience. I will be praying for what God has in store. I will pray for strength in going through that process.
Walking is something all of us take for granted. When that is taken away or limited, you really realize how much you miss it and how wonderful it is. I want to experience walking into high school. Whether it be just walking in using a walker, walking in and then getting back in the chair, or walking in and not using anything I don’t care. Even if I have to wait until the end of the year or until Senior year, I will be thankful to walk into school because walking is a gift. So next time you see someone using a wheelchair, using crutches, using a walker, or anything else don’t give them a weird look. Wonder what it’s like to be in their shoes, offer to help them, or even open a door for them.
The necrosis, the steroids and chemotherapy caused, has temporarily taken away walking from me. I may be able to walk short distances, but I walk with pain almost every day, whether the pain is a 1 or a 10. It has taken my ability to take a hike, walk around the block, and so much more. I will not let it defeat me or get me down! I will rise up and work towards making those few steps into high school, into the grocery store, into the mall, around the block, etc.!
This week, Tuesday the 29th we went to see my shoulder doctor, Dr. Kam. From my bone doctor, we were told my shoulder is closed. So we went and seen Dr. Kam to let him know and see where we are going from here (surgery?).
If you guys haven’t read my post before about my shoulder I ‘ll give you a little background. I went through 2 1/2 years of cancer treatment for Pre-B Cell High Risk Acute Lymphoblastic Leukemia. The steroids and medicine have caused me AVN of both knees and my left shoulder. Due to the a vascular necrosis, my shoulder is pretty much destroyed. I now need a shoulder replacement.
I have been waiting for my growth plate to close so that I am at skeletal maturity and can go ahead with surgery. Well, now I am closed and ready for surgery. We talked about all the complications, what this journey will consist of, and what happens once I go down this road. It is a huge decision deciding to have a shoulder replacement, especially at my age. My huge deciding factor was pain relief.
I thank God over all for being with me through this journey and never leaving my side. I have prayed countless days and nights over what I should do and what is the best decision. I thank him for putting the right people and doctor in my life to take care of me. I am so thankful for my family for being by my side, always taking care of me, and loving me.