Yesterday, I came home from school and my mom said she had something for me. She pointed to T.V. stand where there was a clear bag. I was confused about what it was until, I realized that it was……MY PORT! I was so excited! It is a memory I get to keep. It symbolizes all I have went through and the end of a part of my journey. IT IS SO AMAZING! God is good, and I am so thankful that he has been by my side. As well as giving me my family to walk this journey with me.
Sue is such an amazing woman! She always brings a smile to my face when I see her, even when I don’t feel well. I love her so much! She always comes to see me when I visit the clinic. She has taught me so much on how to cope and deal with the diagnosis I was given almost 4 years ago. She has seen me in my best and worst moments. An has helped and walked me through dealing with it. I am thankful to have her in my life and to know her personally. I LOVE YOU SO MUCH SUE! ??
Yay! My port is out! I went in yesterday afternoon for the surgery. I was a bit nervous, but the excitement took over. This is a huge step in my journey! It to me, signifies the end, like the real end. I am so happy and thankful to all the people who have walked this journey with me. An the people who have encouraged me and lifted me up. Everyone who has fought right along side me, especially my family who has never left me! All the glory goes to God! In him anything is possible, you just need to believe and put your faith in him! “I CAN DO ALL THINGS THROUGH CHRIST WHO STRENGTHENS ME.” Philippians 4:13
Pictures – (top: after surgery; bottom: before surgery with a stuffed animal the lady who got me settled gave me)
Last night I went to one of my first big outtings in A WHILE! I got free tickets to go to a concert thrown by Fresh Empire that featured DJ So Hype and Miss Mulatto. My sister and I were screaming when the guy told us about the tickets in the first place. I was so excited about it that when I got home, that that night I ordered tickets for my sister, a couple friends, and I to go.
Well it was last night and I had a blast! We danced A LOT, took pictures, listened to Miss Mulatto, and overal enjoyed ourselves! I stood and danced all night long. Mind you this was the longest I have stood for in a while. It didn’t start until 8 and went until 11. As well as danced. I barely danced at my 8th grade dance and was in a wheelchair at Homecoming last year, so I was proud of myself for dancing for that long. I was very proud of myself, my first big outting in a long time. God works in wonderful ways! I thankhim for giving me the strength and energy to get through last night! I also want to thank Fresh Empire for doing this for us teens! Something awesome for us to do instead of being out on the streets all night getting into trouble.
Today at school, I got a game called Bulldawgopoly (like monopoly). Teachers were given them to give to one special student. When I went into my Photography class I noticed my teacher hadn’t given hers away yet. Another student and I admired it at the beginning of the class. Later in the period, I talked to the teacher about it and told her I really liked it. She is like “I am going to give it to you just don’t show it to the kids in the class, get it before you leave.”
As I left class early I grabbed it. I went to my next class but the door was locked so I sat on the floor admiring the game. I noticed a story on the back and read it. It talked about a girl who found out she had an inoperable brain tumor called ganglioglioma on May 19, 2011 at 15 years old. The parents searched for a cure and found The Burzynski clinic. It was starting trials that had a 70% success in stopping the growth ot reducing all types of cancers. After only having less than a 1% chance of living 5 years, her parents pursued the clinic. The cost was an issue though, insurance only covers a small portion of the $8000 a month cost. That is when the ideal for Bulldawgopoly came in. 100% of the sales of this game go directly towards Kassidy’s cancer treatments. How amazing that they are doing this for her.
The website on the box is www.lateforthesky.com
Please check it out.
In Photography Class, these past 2 weeks we have been working on soming she called “The Theory of Life”. Basically, we had to create a 3 by 4 collage of pictures that expressed the words below it. After you put it all together, it would be a story. You could write about anything, but I chose to write a short story about my journey. Here is a picture of the final product…….
I am so proud of it and everyone likes it. I love the facial expressions and the story. I am so proud of myself, I worked hard on it, it was more complicated than you think.
Friday I had a cancer doctor appointment. Everything looked great, but I got so excited when…… Arlene, my mom, and I talked about getting my Port out!!!!! Talk about EXCITING!!!!
So I know you guys probably read my Wheelchair Raint a little while back, I have an update on that.
For the past 3 weeks I have been walking in school and not using the wheelchair. My wheelchair went out the Sunday before the day I was supposed to go to school. It just gave out. I decided that I would just walk around the school but use the elevator. I wasn’t going to push myself, but I knew I could do it. After the frst day,I felt great. My parents found someone that xould fix the chair but I wanted to walk. I told them I’d pray over it and see what I wanted to do. I felt God telling me to do it amd not to limit myself. That I needed to trust in him and myself, not to doubt him or let anyone doubt me. Ever since then, I have been walking in school. A HUGE ACCOMPLISHMENT FOR ME!!
The Month of September is Childhood Cancer Awareness Month. Unfortunately, I know to much about this. I feel like no child should have to go through this.
Here are some statistics you may not havd known.
•Everyday 46 children will be diagnosed with cancer.
•A child is diagnosed every 2 minutes worldwide.
• Childhood cancer is the leading cause of death by disease in children under the age of 15 in the U.S.
• Childhood Cancer is vastly and constantly underfunded. Childhood Cancer on gets 4% of funding.
• One in 285 children in the U.S. will be diagnosed with cancer by the time they are 20 years old.
To be honest, that is very saddening.
Childhood Cancer effects not only the person who has it, but the entire family. I know this first hand, as of June 10, 2016 I am one year Cancer free. For 3 years I endured cancer treatment and the side effects that come with it. Till this day, I still have many side effects. I will fight for all my fellow warriors! Cancer is something no child should ever have to endure. We should not have to have our childhood taken away to deal with something so horrible. We take medicine to heal us everyday that makes us not feel so well, but we dont complain because we want to get better. All the kids I see at the clinic have a glowing smile on there face even though they are fighting this monster. I have lost to many friends and fighters to this deadly disease. It is time to stand up and take a stand. We need to fight for the children that are our future.